ASAN-Central Ohio/Ohio State

Posted on May 31st, 2009 in blog rants by Aspie Rhetor

I’m slowly starting to get this whole “chapter director” thing into my routine, with hopes that I will pick up where I left off with blogging regularly. The ASAN-Central Ohio group is going well, very well. We rotate between meeting face-to-face and online: our aim is to be as inclusive as possible. Many in our group (including me) tend to get overwhelmed by too much contact and socialization, or just find text to be more preferable for communication.

Right now, our group has two big plans. The first is event-planning for Autistic Pride Day, which falls on June 18. The whole of April is dedicated to autism awareness, but the awareness preached in April tends to be of the medical sort, the sort that hyperfocuses on cure and prevention and alarmism. Our plans for the event have not been solidified yet, but we’re aiming for something that celebrates autistic culture. We’d been tossing the idea of holding an autie picnic in some prominent locale (e.g., the capitol lawn) and printing up a bunch of pamphlets that describe autism positively for passersby. We also have artists, writers, and possibly musicians in our group, and we’ve thought about asking those individuals to showcase their work, if they feel comfortable. We’ve decided to combine this picnic idea with another: we’re hoping to meet with a few state reps on the morning of June 17 and talk to them about ASAN, neurodiversity, and Autistic Pride. After that, then we’ll segue into the picnic and fun stuff.

The second item we’re planning is going to require a good deal of elbow grease: we want to visibly protest the Autism Speaks walk in Columbus on October 11. For a number of reasons, Autism Speaks doesn’t coalesce with neurodiversity activism. First of all, none of the Autism Speaks leadership positions are occupied by autistic people. Moreover, Autism Speaks frequently employs alarmist rhetorics in their depiction of the spectrum, e.g., comparing autism to lightning-strike stats, pediatric cancer, and AIDS. According to their organization, inviduals on the spectrum are inherently suffering and pitiable people who present an excessive burden to families and society. Autism Speaks’ main goal involves cure and prevention, and instead of directing their funding to support autistic individuals in their everyday lives, the group focuses on eradicating autism (or eradicating autistic people).

Our goal is for this protest to be peaceful: we hope to gather a large number of people and stand on the sidelines with large posters and signs. We also plan to write letters to the local Autism Speaks chapters, as well as their sponsors, before the event takes place. In our latest ASAN meeting, we discussed the difference between being “strong” and “militant” in our goals — strong having the better connotation. Given the events happening on the Ohio State campus recently, many of us are incredibly frustrated with Autism Speaks. Those of us who have written to them have been ignored or brushed off, and any disagreement we have with their methods or end goals is chalked up to us being so-called black-and-white or unempathetic or literal-minded disabled people who don’t know how bad we (or they, the poor families) have it.

A bit hard to read because of the wind, but the banner is hanging from a sorority house. It has a puzzle piece and Autism Speaks written on it, and is hanging for a fundraiser called "flippin fuzzies."

A bit hard to read because of the wind, but the banner
is hanging from a sorority house. It has a puzzle piece
and Autism Speaks written on it, and is hanging for a
fundraiser called “flippin fuzzies.”

How are autistic people supposed to react when we see people wearing t-shirts like this? “Grateful” that people think of us as puzzles, as missing a few cognitive pieces? In what way is that not insulting?

How are we supposed to act when campus Greek life displays banners like the one above, or gives interviews like this one? Or when local grocery stores claim that a pseudo-eugenics organization aligns with their core values? I shudder at the thought that my peers, professors, and students might think of me and other autistic people as diseased, devastating, and lacking in “proper” brain function — everything a matter of deficit, deficit, deficit.

…hence, the protest.

My middle name

Posted on May 30th, 2009 in blog rants by Aspie Rhetor

The map is new, and I know it all. I hop from one painted state to the next, reciting each capital, each state bird, each state nickname, each state flower, each state population as of 1989, the year imprinted on the spines of my World Book Encyclopedia set. It is 1994 or 1995, and I’m obsessed with maps. I have a Mercator Projection of the U.S. tacked to my bedroom ceiling and a Robinson of the world taped to the wall. Each morning I awake to the series of lines and dots and borders, pull a fuschia sweatshirt over my head before skulking into the predawn world, the world where I deliver six routes worth of the Concord Monitor with my father. I want to know where Franklin St. ends, where Penacook St. begins, where the tangible tar resides on the not-to-scale ceiling map, the round-edged wall map, the neon playground map.

On the first day of fifth grade, the teacher read off my middle name during roll call, and now they all know it. As I wrench myself across South Dakota and Nebraska, I hear taunts of Melanie-Rita-Book and Melanie-Rita-rd and Rita-rd-Died-A-Yer-a-geau.

And I awake the next morning, place Mrs. Toomey’s paper on the mailhooks, run from the chained pitbull at the Pembroke duplex, imagine a story in my head about an island made entirely of sugar, wonder if the series of rivers I’ve mentally sketched will eventually absorb the grass and cause massive island sinkage. And at recess, Jessie pushes me onto Georgia and calls me stupid, and Cindy, my only friend, has stolen a doll from my knapsack, but I pretend I haven’t seen her stuff it up her blouse. Jessie #2 makes fish faces and chants Rita-rd, Rita-rd, so I venture back with the only retort my Rita-Book brain can muster and call her a neutrino, which she unfortunately hears as nutra-nose. I run from the map and the impending fists, terrified, and self-induce an asthma attack.

The Robinson fascinates me. The edges curve, the lined coordinates uneven and gapped. I imagine my paper routes, imagine Jennings Drive and Wyman St., now a collection of lines. Down the hall, my parents play cards with the neighbor, my father recounting the story of how I flawlessly navigated a trip from Florida to New Hampshire at age seven. Earlier that week, he tried to make me grab a flyer from Market Basket and I tantrummed, wanting to know every precise detail from door entry to turns to grab-from-the-shelf protocol. So unfamiliar and unpredictable seemed the grocery store landscape, so intense for me, age 10, and even now in my twenties, to conquer on my own. And he had uttered that familiar, frustrated reply, “How can you be so smart and so stupid?”

I love my fifth grade teacher. I am working on a play about the Great Lakes region, and she lets me stay indoors during recess to work on it. I meet with a guidance counselor weekly, a Virginia-shaped man convinced that I’m at fault for my own bullying, and every time he suggests outside recess, I produce the magical asthma wheeze. Back I go to the teacher’s aide-cum-babysitter, to the longish table stationed outside the library, and I write about Sheila the Robber and her trip from Columbus to Cleveland. I sit at my laptop, some fifteen years later, staring at a Columbus city map, trying to remember the neon and the dots, the second Jessie who died of a brain tumor, the first Jessie who traipsed me into junior high, the dolls lost in the longitude.

Program of study

Posted on May 13th, 2009 in blog rants by Aspie Rhetor

I’m a Ph.D. student in English. I finished coursework in March, and I’m now prepping for my candidacy exams, which I hope to take the last week of September. My department requires a program of study from PhD students — a longish document in which we propose our field and focus areas for our exams, as well as our reading list. The POS also includes a description of the dissertation, plus some other description-like stuff (e.g., previous graduate work, teaching and professional experience, conference presentations, publications, projects, and the like).

I’m happy to say that my POS passed (!), and I’ve begun tackling my reading list. I’ve here posted the descriptions of my field, focus, and dissertation, if only because they deal with autism and rhetoric in a large way. Of course, things are subject to change, and my thinking will evolve, I’m sure. But nonetheless, this seems to be an accurate picture of where I’m at right now.