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	<title>Comments on: Protesting Autism Speaks</title>
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	<link>http://aspierhetor.com/2009/11/02/protesting-autism-speaks/?utm_source=rss&#038;utm_medium=rss&#038;utm_campaign=protesting-autism-speaks</link>
	<description>{ on autism, rhetoric, technology, &#38; ELO }</description>
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		<title>By: Protesting Autism Speaks &#124; rivaze</title>
		<link>http://aspierhetor.com/2009/11/02/protesting-autism-speaks/comment-page-1/#comment-1357</link>
		<dc:creator>Protesting Autism Speaks &#124; rivaze</dc:creator>
		<pubDate>Thu, 28 Apr 2011 16:50:13 +0000</pubDate>
		<guid isPermaLink="false">http://aspierhetor.com/?p=543#comment-1357</guid>
		<description>[...] Protesting Autism Speaks posted by Aspie Rhetor on 2009.11.02, under blog rants 02: [...]</description>
		<content:encoded><![CDATA[<p>[...] Protesting Autism Speaks posted by Aspie Rhetor on 2009.11.02, under blog rants 02: [...]</p>
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		<title>By: Protesting Autism Speaks &#124; rivaze</title>
		<link>http://aspierhetor.com/2009/11/02/protesting-autism-speaks/comment-page-1/#comment-1356</link>
		<dc:creator>Protesting Autism Speaks &#124; rivaze</dc:creator>
		<pubDate>Thu, 28 Apr 2011 16:48:03 +0000</pubDate>
		<guid isPermaLink="false">http://aspierhetor.com/?p=543#comment-1356</guid>
		<description>[...] http://aspierhetor.com/2009/11/02/protesting-autism-speaks/   This entry was posted in Uncategorized. Bookmark the permalink.    &#8592; Night of Too Many&#160;Stars   LikeBe the first to like this post. [...]</description>
		<content:encoded><![CDATA[<p>[...] <a href="http://aspierhetor.com/2009/11/02/protesting-autism-speaks/" rel="nofollow">http://aspierhetor.com/2009/11/02/protesting-autism-speaks/</a>   This entry was posted in Uncategorized. Bookmark the permalink.    &larr; Night of Too Many&nbsp;Stars   LikeBe the first to like this post. [...]</p>
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		<title>By: Aspie Rhetor</title>
		<link>http://aspierhetor.com/2009/11/02/protesting-autism-speaks/comment-page-1/#comment-359</link>
		<dc:creator>Aspie Rhetor</dc:creator>
		<pubDate>Sat, 07 Nov 2009 15:42:21 +0000</pubDate>
		<guid isPermaLink="false">http://aspierhetor.com/?p=543#comment-359</guid>
		<description>Sarah: Yeah, our administration here makes me feel so angry a lot of the time. They pretend as though we don&#039;t exist. Grr, indeed!</description>
		<content:encoded><![CDATA[<p>Sarah: Yeah, our administration here makes me feel so angry a lot of the time. They pretend as though we don&#8217;t exist. Grr, indeed!</p>
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		<title>By: Sarah</title>
		<link>http://aspierhetor.com/2009/11/02/protesting-autism-speaks/comment-page-1/#comment-358</link>
		<dc:creator>Sarah</dc:creator>
		<pubDate>Tue, 03 Nov 2009 16:22:05 +0000</pubDate>
		<guid isPermaLink="false">http://aspierhetor.com/?p=543#comment-358</guid>
		<description>Sorry you have to deal with the constant Autism Speaks promoting at OSU.  This speaks quite badly of the administration&#039;s willingness to listen to autistic students.  Grr.

And the AutSpeaks fundraisers?  Wow, those really are autistic-unfriendly events.  Nothing like creating fundraising events which completely exclude the people you&#039;re trying to &quot;help.&quot;  I wish I were more surprised about this.</description>
		<content:encoded><![CDATA[<p>Sorry you have to deal with the constant Autism Speaks promoting at OSU.  This speaks quite badly of the administration&#8217;s willingness to listen to autistic students.  Grr.</p>
<p>And the AutSpeaks fundraisers?  Wow, those really are autistic-unfriendly events.  Nothing like creating fundraising events which completely exclude the people you&#8217;re trying to &#8220;help.&#8221;  I wish I were more surprised about this.</p>
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		<title>By: Aspie Rhetor</title>
		<link>http://aspierhetor.com/2009/11/02/protesting-autism-speaks/comment-page-1/#comment-357</link>
		<dc:creator>Aspie Rhetor</dc:creator>
		<pubDate>Tue, 03 Nov 2009 15:13:07 +0000</pubDate>
		<guid isPermaLink="false">http://aspierhetor.com/?p=543#comment-357</guid>
		<description>I don&#039;t presume to speak for you or your son.

I do speak *with* a community/communities of other autistic individuals, including those whose experiences have been different from my own. And certainly there are other non-autistic allies/parents/professionals who speak with us as well. 

And how the heck does Autism Speaks speak for autistic people when there aren&#039;t any autistic people involved in leadership/decisionmaking roles? Add to this their poor record for community/family supports -- 4% of their operating budget. 

From what I know of you and your blog, we&#039;re slated to disagree on most things (maybe all things) because we occupy different ideological stances -- you&#039;re pro-cure, I&#039;m decidedly not; you like to distinguish between labels that involve the idea of &quot;functioning&quot;; I tend to hate those labels, and find them dehumanizing/totalizing labels that disregard a person&#039;s individuality and humanity (as well as disregard a whole host of other things). 

Moreover, I fail to see how focusing so intently on research on cure/prevention to the near-exclusion of supports *helps* autistic people, or represents the interests of autistic people. We exist, and the AutSpks agenda is to make us not exist.

You&#039;ll disagree with me, I&#039;m sure. And I get the sense this comment of yours was meant in an insulting manner?</description>
		<content:encoded><![CDATA[<p>I don&#8217;t presume to speak for you or your son.</p>
<p>I do speak *with* a community/communities of other autistic individuals, including those whose experiences have been different from my own. And certainly there are other non-autistic allies/parents/professionals who speak with us as well. </p>
<p>And how the heck does Autism Speaks speak for autistic people when there aren&#8217;t any autistic people involved in leadership/decisionmaking roles? Add to this their poor record for community/family supports &#8212; 4% of their operating budget. </p>
<p>From what I know of you and your blog, we&#8217;re slated to disagree on most things (maybe all things) because we occupy different ideological stances &#8212; you&#8217;re pro-cure, I&#8217;m decidedly not; you like to distinguish between labels that involve the idea of &#8220;functioning&#8221;; I tend to hate those labels, and find them dehumanizing/totalizing labels that disregard a person&#8217;s individuality and humanity (as well as disregard a whole host of other things). </p>
<p>Moreover, I fail to see how focusing so intently on research on cure/prevention to the near-exclusion of supports *helps* autistic people, or represents the interests of autistic people. We exist, and the AutSpks agenda is to make us not exist.</p>
<p>You&#8217;ll disagree with me, I&#8217;m sure. And I get the sense this comment of yours was meant in an insulting manner?</p>
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		<title>By: Harold L Doherty</title>
		<link>http://aspierhetor.com/2009/11/02/protesting-autism-speaks/comment-page-1/#comment-356</link>
		<dc:creator>Harold L Doherty</dc:creator>
		<pubDate>Tue, 03 Nov 2009 12:33:50 +0000</pubDate>
		<guid isPermaLink="false">http://aspierhetor.com/?p=543#comment-356</guid>
		<description>Autism Speaks doesn&#039;t speak for you? Good.  And you don&#039;t speak for my son with Autistic Disorder assessed with profound developmental delays.</description>
		<content:encoded><![CDATA[<p>Autism Speaks doesn&#8217;t speak for you? Good.  And you don&#8217;t speak for my son with Autistic Disorder assessed with profound developmental delays.</p>
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